Thursday, 23 April 2009
The following day and my feet had joined in. MS had cunningly attached pliers to all my toes and pressure was being exerted to all of them individually in some sort of weird toe/pliers relay...all this to the accompaniment in my head of heads, shoulders, knees and toes. Of course the lyrics gradually morph to suit your needs. Heads , shoulders, my toes hurt (my toes hurt). Round and round and round. Heads,shoulders....Suddenly I'm missing Bruce.
That evening I hobbled round the kitchen trying to cook dinner ....until Fi could take it no more. Sit down will you. You're driving me mad. It was time for Bruce - Baby I was born to run....hopefully tomorrow.
Saturday, 18 April 2009
Her parting gift to me is 3 months supply of hamster serum in its max strength - 44mgs. Heavy duty. Dr. G pops in to check I can handle it. Can you handle it...can you handle the hamster? Is not what he says at all. In fact he says I doubt you'll even notice the increase. Generally speaking if 8mgs doesn't do you in then nothing will. Nice. He's amused to hear that my twitching has stopped. Nothing to do with the hamster serum he says just co-incidental remission. That evening we're at a play in London and my hand starts to co-incidentally twitch as that familiar numbness starts to make its way down my arm. A healthy dose of beer in the pub after seems to numb everything else enough to make the arm feel at home. The following day and I'm back to full limb feeling. My mind is just playing tricks on me.
Back at work and a colleague introduces me to a scrawny fifteen year old kid who is joining the Youth Theatre...Dave Carey my colleague says...meet...Dave Carey, it's a small world isn't it...what are the chances of that eh? I look this kid in the eye...d'you wanna join a band?
Sunday, 12 April 2009
Well I don't know about Britain but Dave Careys have definitely got talent. Turns out there's loads of us. Dave Careys are playing in bands in Pennsylvania, Boston and New Jersey - New Jersey Dave has even recovered from Leukemia which makes him leader of the band in my book. And...he plays the trombone! I'm a bit rusty but my trombone is still in the loft...I could get it out again...little bit of practice....Then it turns out that another Dave Carey had a #1 HIT in 1957...Bingo! Bingo!! I'm in love...Should this be our first release? A cover of Dave Carey's Bingo! Bingo! recorded by Dave Careys....it could start with a trombone duet. I need to check it out with Florida Dave first as he's been in the band from the start and really it's our band.
Meanwhile the diabetes jury is still out...the blood specimen was 'unable to be processed'. But what the hell does that mean? Unable to process because they've lost it? - because they accidentally heated it in the microwave with some tomato soup? Or did someone mix in half a pound of silver spoon granulated and I'm technically speaking dead but they haven't got the heart to tell me...but no...Don't worry they say, we'll take another sample when you're next here.
This means next week as I'm back for tests to see if my blood is ok for an increase in hamster serum injections (up to 44mgs). The injections are now leaving their familiar red marks at the injection site. On my stomach two red patches sit above my belly button like eyes and I'm definitely getting some odd looks a the gym, particularly in the sauna where the heat seems to exaggerate the red blotches. In fact if I position my hands correctly my whole stomach does a reasonable impression of Edvard Munch's 'the scream'. Good enough to go on Britain's got talent I think.
Sunday, 5 April 2009
In the midst of all this it's easy to forget the MS bit...or rather it's nice to forget. I've now stepped up to 22 mgs of Beta Interferon Chinese Hamster Cells. I have to say that since the hamster injections started there has been no real difference to my MS hands and feet - they still feel like they are being slowly electrocuted....BUT....and this is quite an exciting BUT...the spasms that I had begun to feel quite self conscious about have all but disappeared. No more do I twitch in the middle of an important meeting...Once, a 'super twitch' that occurred during a show made my foot leap in the air and land on my sustain pedal leaving my keys temporarily blurred. Then I couldn't get my foot off the damn pedal for a whole verse and chorus. It only left when another spasm lifted the errant foot off the pedal long enough to clear the sustained row before landing back on the pedal and starting the whole process off again...but now the worst seems done...I haven't elbowed one of the kids involuntarily for ages...love it...we're off to France for a day trip tomorrow...I wonder if I can track down a French Dave Carey...maybe some accordian would give us a bit of a cajun edge.
Wednesday, 1 April 2009
If there aren't enough Dave Careys with MS I could widen the net to include other neurological illnesses...a drummer called Dave Carey with Parkinsons would be fine (if a little bit shakey)...I've found a guitarist called Dave Carey in Canada but there's no mention of illness...should I twitter him and ask if he's ill?... Hey! Should we include David Careys?
Let's imagine if MS vs Dave Carey could be a trio or even a quartet...the Guinness book of world records be interested....radio play for certain...a hit single guaranteed...we'd probably break up though, we'd get on each others nerves...what's left of them.